Category Archives: Events

The 2021 Virtual National Juvenile Arthritis Conference Was a Wonderful Success

A bigTHANK YOUto all JA families, planning committee members and sponsors for making the 2021 Virtual National Juvenile Arthritis Conference a huge success! This year, we welcomed more than 850 total attendees — including 373 first-time participants — from 42 states and three different countries.

The JA Conference offered 71 virtual sessions and gave attendees the opportunity to connect and network with other moms, dads, families, siblings, caregivers and, of course, young adults, teens and kids with JA who share similar challenges and triumphs. Even in these trying times, we showed the world that together we are stronger than JA!

“My daughter was recently diagnosed and had never met any kids with JA. She enjoyed meeting and playing virtually with kids that experience the same things she does. The JA Conference gave her a sense of community and showed her that she wasn’t alone.”

—JA Mom and Conference Attendee

The expanded conference program offered more than 30 live sessions on a variety of topics including our COVID-19 session series and a conference favorite session: a live chat with Natalie Decker, NASCAR driver and arthritis warrior, who joined families to share her inspirational story and answer questions from conference attendees. The JA Conference also introduced an SJIA track to the conference program and provided a variety of sessions for kids and teens including another conference favorite: the Panda Bear Clinic.

Miss any of the JA Conference content? Browse the JA Conferencesession videos.

This year, Katy & Bridget Carter of Winnetka, California, received the 2021 Steve and Liz Smith Legacy Award for their many years of volunteer service to the JA Conference and the JA community. Katy and Bridget were honored for developing, implementing and building the sibling program at the JA Conference. Check out thesurprise presentationand touching reaction during the closing session. The JA Conference also recognized outstanding volunteer leadership by awarding the 2021 JA Awards of Excellence. The awards are presented to a physician, youth leader, young adult, parent and health care professional who show exceptional leadership and commitment to the JA community. This year’s winners include: Lily Laurent, Dawn Hafeli Award for Youth Leadership; Haley Mapp, Young Adult Leadership Award; Anne Jackson, RN, Patti Rettig Award for Health Care Professional Leadership; Dr. Ashley Cooper, Earl Brewer Award for Physician Leadership; and Bob and Jen Tonning, Parent Leadership Award. Congratulations award winners!

“谢谢你,JA大会!在这些会议中,我学到了很多关于如何使医疗过渡更顺利的知识。这次会议让我知道,我可以选择我的护理!”

—JA Young Adult and Conference Attendee

A huge thank you toALLattendees of the JA Conference, as well as conference chairs, Jenn and Shane Cox; special guest, Natalie Decker; plus, the planning committee; volunteers; subject matter experts; physicians; and guest speakers. And special thanks to National Presenting Sponsor, Abbvie; Supporting Sponsor, Alpha Omicron Pi; and additional supporter, Genentech.

Save the dates for the2022 National Juvenile Arthritis Conference, where we are excited to return to an in-person event. Next year’s event will feature a “Family Reunion” theme and will be held July 14 to 17, 2022, in Orlando, Florida. We hope to see you there!

2020 Virtual JA Camp Banner

We are Camp Stronger than JA, virtually!

这个夏天可能看起来不一样,但我们仍然有机会在JA夏令营交流。我们全新的虚拟JA夏令营体验将为所有参加JA夏令营的人带来夏令营的魔力,无论你身在何处!虽然我们不能代替在一起,但我们很高兴能为营员提供另一种沟通和乐趣的选择。

The Arthritis Foundation is proud to offer free, at-home summer camp experiences across the United States for kids and teens withjuvenile arthritis以及相关的儿童风湿病。青少年关节炎(JA)训练营是由Alpha Omicron Pi兄弟会和基金会(AOII)在全国范围内赞助的,以及支持伙伴Bristol Myers Squibb、罗氏集团成员基因泰克和纪念杰西卡·索尔的萨尔家族基金。由于赞助和捐赠,虚拟营地免费提供给家庭。

Alpha Omicron Pi兄弟会的执行董事Kaya Miller分享道:“对于我们的许多成员来说,我们对关节炎基金会营地计划的支持是我们共同工作中最引人注目的方面之一。分会和成员特别热衷于筹集资金,帮助儿童和青少年参加JA夏令营。AOII理解这种热情,并为能够支持这一重要的JA计划而感到自豪。”

Our Virtual JA Camps will offer a few of the programs and traditions campers are used to at in person camp – mindfulness, movement, arts and crafts, camp songs and more! Campers will interact through live video sessions, giving them the chance to see faces of familiar friends and counselors. All Virtual JA Campers will also be mailed an activity workbook. Through our camp programs, even virtually, campers gain a greater understanding of their own diagnosis and treatment, build strong peer-support networks and develop the skills they need to become effective leaders, advocates and champions in their everyday lives. A camper from our Teen Retreat in California shared, “I felt like Virtual JA Camp really helped me discover options for moving forward with college and independent doctors’ appointments with JA.”

来自犹他州KODA营地的志愿者联合营地主任克莱尔·佩肯帕分享说:“KODA营地一直是我们在山间西部地区患风湿病的孩子们的重要资源。通过将营地转移到一个在线的虚拟平台,我们已经能够安全地与来自我们市场各地的人联系,犹他州、爱达荷州和蒙大拿州,以及内华达州和怀俄明州。虽然在线营与每年的面对面营不同,但我们很高兴孩子和年轻人能彼此联系,讨论一些具有挑战性的话题,如:倡导、慢性疾病的生活和精神健康。感谢来自小学儿童医院的志愿者和医护人员的帮助,今年我们有机会接待59名孩子参加我们的虚拟营!国家和地方关节炎基金会分会的筹款努力给了我们这个机会,为患有慢性疾病的孩子们提供一个安全的环境,让他们走到一起,意识到还有其他孩子和他们一样。正如我们一次又一次告诉孩子们的那样,我们作为一个社区在一起会更强大。”

Visit ourcamp websiteto register for an Arthritis Foundation Virtual JA camp today. We hope to connect with you online!

2020 Juvenile Arthritis Conference Banner

Introducing the 2020 Juvenile Arthritis Conference Theme: Family Reunion, Stronger Together

你是否患有幼年关节炎?那你就是我们大家庭的一员了!

2020年,我们将在家庭聚会上庆祝联系,度过宝贵的时光。来自全国各地的JA家庭将聚集在一起,从彼此身上汲取力量,变得比以往任何时候都更强大。对于长期以来和新手一样,全国JA大会是一个好玩的地方在夏天!Continue readingIntroducing the 2020 Juvenile Arthritis Conference Theme: Family Reunion, Stronger Together

The 2019 National Juvenile Arthritis Conference Welcomed Almost 1,800 Attendees

Over two long weekends in mid-July and early August, about 1,800 participants made their way to Houston, Texas, and Minneapolis, Minnesota, to take part in the 2019 National Juvenile Arthritis Conference. As in previous years, the Arthritis Foundation offered two JA Conference locations to serve even more kids, families and young adults across the country affected by childhood rheumatic diseases while also welcoming back returning veteranfamilies.Thisyear, more than 40 states were represented, including some families from Mexico and Canada. In both cities, more than half of conference participants were first-time attendees, experiencing everything the four-day conference had to offer. Kids and teens were treated to their own specialized programming, including peer-led activities, educational sessions and fun social happenings.

At the same time, parents choose their own breakout sessions throughout the day — from disease-specific sessions hosted by top doctors and health care experts to topics like educational rights in schools and transitioning from adolescent to adult medicine. Plenty of networking opportunities were available for female and male caregivers to connect and socialize with one another.

Young adults ages 18-25 also participated in their own program throughout the weekend, covering subjects such as mental health and wellness, relationships and patient engagement strategies. Guided by volunteer leaders, young adults were also able to participate in panels and speak to parents and teens, giving a positive glimpse into their own futures. The young adults group planned their own social activities and had a “night in” to hang out and network among their group.

On Saturday at each conference location, JA Awards were presented to a physician, youth leader, parent and health care professional who show exceptional leadership and commitment to the JA community. This year’s winnerswere:PaigeGoehner, DawnHafeliAward for Youth Leadership; Staci Scharnhorst, Patti Rettig Award for Health Care Professional Leadership; Dr. Richard Vehe, Earl Brewer Award for Physician Leadership; andDiAnnaWilson, Kathy Angel Award for Parent Leadership.

今年,佛罗里达州坦帕市的Michael和Rochelle Lentini夫妇首次获得了一个以Steve和Liz Smith夫妇命名的新奖项,以表彰他们多年来为JA会议和JA社区提供的志愿服务。2015年,Rochelle在奥兰多主持了JA会议,并从那时起帮助儿童和青少年规划节目。在每次会议上,迈克尔都在父亲会议和现场支持中扮演着不可或缺的角色。

A huge thank you to ALL attendees of the 2019 JA Conference in Houston and Minneapolis, as well as JA Conference Chairs Bob and JenniferTonning; special guests MegMaley, PaigeGoehnerand KooKooKanga Roo,以及计划委员会、现场志愿者、主题专家、医生和嘉宾演讲。

Special thanks to National Presenting Sponsor AbbVie; Supporting Sponsors Amgen, Novartis and Alpha Omicron Piand all exhibitors and in-kind donors.

JimSalanty艾伯维美国风湿病学副总裁说,该公司的使命与JA会议的使命一致:为患有幼年关节炎的儿童培养积极的体验,并为疾病管理和支持提供重要的资源。“[JA Conferences] also provide these children the valuable opportunity to meet and connect with others who may be navigating a similar journey living with their condition,” he says.

把时间留给2020年的JA大会吧,在那里我们将有一个史诗级的“家庭团聚”。我们希望在那里见到你!

JA Conference – Orlando
July 23-26, 2020
Renaissance Orlando

Houston Kicks Off the 2019 National Juvenile Arthritis Conference Today!

Houston Kicks Off the 2019 National Juvenile Arthritis Conference Today!

Over 800 kids, teens, young adults and their families from across the country are landing in Houston, Texas, for the first of two NationalJuvenile Arthritis (JA) Conferencesthe Arthritis Foundation is hosting this year. This week’s conference will kick off our 35th annual gathering of JA families duringJA Awareness Month, and offers a variety of events and informational program tracks focused on education, connecting with others and fun.Continue readingHouston Kicks Off the 2019 National Juvenile Arthritis Conference Today!

July Is JA Awareness Month: Help Give Kids the Chance to Feel Included

The school year is an opportunity to enjoy some of the best memories with friends. But for many kids with juvenile arthritis (JA) and other rheumatic conditions, being in school can sometimes bring feelings of isolation. Many kids with JA have never met a friend with the same diagnosis. They never get to take a break from a serious illness that’s often quite painful, makes the immune system go haywire and can be downright lonely at times.

Summer break, however, is another story! The Arthritis Foundation provides camp programs and our National Juvenile Arthritis Conference in two locations, giving kids with JA the experience of a lifetime and the chance to feel included. Meeting other kids with the same disease fosters courage and strength and teaches them how to advocate for themselves.

That’s why July is Juvenile Arthritis Awareness Month — a time when we put a spotlight on JA, so more people know what living with it is like. We also take the opportunity to encourage parents who suspect their child may have arthritis to consult a pediatric rheumatologist as soon as possible. Early diagnosis and treatment are the best bet for avoiding permanent joint damage and improving the chance of remission.

JA affects 300,000 families
An estimated 300,000 families in the U.S. face the major disruptions JA can cause, making the disease worth acknowledging and doing something about. More children battle JA than do those who have cystic fibrosis, juvenile diabetes and leukemia combined.

Juvenile arthritis and related diseases in kids have some things in common with adult arthritis, but they’re not the same. Typically, there’s joint pain, swelling, redness and warmth. Otherwise, the many types of JA affect different kids in different ways. They can involve the eyes, skin, heart, lungs and gastrointestinal tract.

JA会让学生很难完成作业,也很难参加社会活动和课外活动。许多患有JA的孩子感到被误解和孤立。有些人欺负。Read one teen’s short memoir about living with arthritis.

Also read aboutCarsonandLaniese两个勇敢的JA战士用他们自己的方式来控制他们的挑战。

What can you do to make a difference?

DONATE
Your support provides the resources families need to live their best life.

  • We hostJA campsnationwide to bring kids together who understand each other and no longer have to feel alone.
  • OurNational JA Conference,将于7月18日至21日在休斯顿举行,8月1日至4日在明尼阿波利斯举行,这将使数百个家庭获得JA的控制权。
  • JA Power Packs帮助新诊断的孩子和他们的家庭适应,并与他人联系以获得建议和支持。
  • Watch ourshort video about Conquering Childhood Arthritis,这是关节炎基金会最优先考虑的项目之一。你将通过研究了解我们的目标。

CONNECT

  • Join ourLive Yes! Online Community,那里有一个特别的帖子供JA家庭交流挑战和建议,另外你还可以向健康专家提问。
  • Our Live Yes! ConnectGroups for JA Parentsbring moms and dads together in person to share their troubles and triumphs, with more local groups forming all the time.

SHARE INSIGHTS

  • Consider signing for thePARTNERS registry,which needs people from diverse communities to participate in surveys, provide ideas and contribute to projects.
  • Clinical trials to advance JA research may be just a short drive away, socheck for nearby studiesand consider getting involved.
  • Watch thisresearch videoto learn how clinical trials work and the variety of roles you can play in JA research.

Ways to help raise awareness

Helping get the word out about juvenile arthritis and other pediatric rheumatic conditions will generate more support for research and resources.

  • Take to social media using the hashtag#StrongerThanJA.告诉所有你认识的人你正在与JA作战,并敦促他们加入你。
  • It’s a snap to add your snapshot to our photo pool — and automaticallyunlock a $5 donation fromcheerity.com.
  • Share your storyabout the ups and downs of living with JA, which will inspire others to get behind our cause.
  • Dedicate a specialJA Awareness Month donationin honor of yourself or a JA Warrior you love and care about.

Coming Soon to a City Near You: The 35th Annual National Juvenile Arthritis Conference

IN A WORLD… where everyday kids become WARRIORS and battle arthritis as the JA League!

All kids and young adults with juvenile arthritis and other rheumatic conditions are heroes —members of ourJA League. Every day, these Warriors battle the challenges that try to hold them back. But in the end, WE WIN! Don’t miss the latest, greatest blockbuster, starring YOU — connecting with other JA superstars.Continue readingComing Soon to a City Near You: The 35th Annual National Juvenile Arthritis Conference

JA Camps Make a Life-changing Difference for Kids With Arthritis

From Cooper Landing, Alaska, to the beaches of West Palm Beach, Florida, the Arthritis Foundation is proud to host camp programs for kids and teens withjuvenile arthritis以及相关的儿童风湿病。除了为儿童和青少年提供安全可靠的露营体验,一些地方还提供家庭露营——一个让整个家庭一起参加的机会。Continue readingJA Camps Make a Life-changing Difference for Kids With Arthritis

2018 juvenile arthritis conference

From Washington State to Washington DC, the 2018 National Juvenile Arthritis Conference Welcomed Over 1,800 Participants

Each summer as school lets out and the weather starts to get warmer, there’s an excitement in the air felt all the way from Long Beach, California to the shores of Long Island, New York. There are always good reasons to be excited for some time off, but for many children, teens, young adults and their families affected by juvenile arthritis and related rheumatic diseases – theArthritis Foundation’s National Juvenile Arthritis Conferencehas become the summer event to look forward to.

Over two long weekends in late June and early August, more than 1,800 attendees made their way to Seattle, Washington and Washington, DC to take part the 2018 JA Conference. As done in previous years, the Arthritis Foundation hostedtwo JA Conference locationsto serve even more kids, families and young adults affected by childhood rheumatic diseases across the country, while also welcoming home returning veteran families.

In both cities, more than half of conference participants were first time attendees to the JA Conference, experiencing everything the four-day conference had to offer. Kids and teens were treated to their own specialized programming including peer-led activities, educational sessions and fun social happenings. At the same time, parents choose their own breakout sessions throughout the day – from disease-specific sessions hosted by top doctors and health care experts to topics such as educational rights in schools and transitioning from adolescent to adult medicine. This year, we also live-streamed two of our most popular sessions for those that were not able to join us in person.

Continue readingFrom Washington State to Washington DC, the 2018 National Juvenile Arthritis Conference Welcomed Over 1,800 Participants