All posts byArthritis Foundation

rheumatoid arthritis research

ELMO1 – More Than Just Your Friendly, Red Sesame Street Character!

Dr. Sanja Arandjelovic has been studying inflammation and arthritis for a while – specifically, how a gene called ELMO1 is related toarthritis symptomsin mice. In 2010, the Arthritis Foundation awarded Dr. Arandjelovic the Philip S. Maaram Esq. Research (Planned Giving) 3-year grant for a project that studied cell enzymes related to joint inflammation inrheumatoid arthritis (RA)in mice.

During this study, Dr. Arandjelovic worked with Dr. Kodi Ravichandran and his research team at theUniversity of Virginiaon a related project, examining the process ofjoint inflammationin RA. Their work may provide clues to why the pain flare-ups associated with RA occur – and lead to new treatments.

Continue readingELMO1 – More Than Just Your Friendly, Red Sesame Street Character!

evening of honors

2018 Evening of Honors: Paying Tribute to Top Supporters

pete scaliaAn annual highlight of the Arthritis Foundation’sConference of Championsis our Evening of Honors – a time when we celebrate outstanding achievements of our most engaged volunteers and partners.

This year’s ceremony was hosted byPete Scalia,俄亥俄州哥伦布市WBNS 10TV“今晨”新闻节目的联合主持人。Diagnosed with severerheumatoid arthritis在30岁的时候,皮特已经非常开放地面对与风湿性关节炎生活的挑战,并积极参与关节炎基金会。

Continue reading2018 Evening of Honors: Paying Tribute to Top Supporters

conference of champions

2018 Conference of Champions: Moving the Movement Forward

This weekend, the Arthritis Foundation’s most engaged volunteers from around the country are gathering in Baltimore’s East Harbor for the2018 Conference of Champions. This annual national event is where hundreds of volunteers – joined by other committed Foundation partners and staff – network with each other, share ideas and get energized around plans that will help more people with arthritis live their best life.

Kicking off the conference isRob Wicall, former San Antonio Spurs Coyote Mascot and chair of that market’s local leadership board for the Arthritis Foundation. Rob will share his own outlook about making others happy and how to convince them that they really can make a difference. We’ll also explore how data collection is helping shape local programs and services for people with arthritis through the new生活是的!Arthritis Network.

Continue reading2018 Conference of Champions: Moving the Movement Forward

Welcome to Campus: A New Community for Students with Arthritis

Going off to college can be a tough transition for anyone. But if you’re ateen with arthritis, starting college can pose unique challenges: leaving behind family and friends who understand and support your health needs, navigating campus on foot when every step causes pain, watching roommates go out at night when you need sleep just to function and feeling like you’re the only young person in the world with a disease associated with old age.

Rachel Mershon and Caroline Bailey know the feeling all too well.Diagnosed with arthritis两年前,14岁的默松第一次离家,去圣路易斯奥比斯波的加州理工学院攻读营养学学位。Bailey was diagnosed withankylosing spondylitis几个月后,她就要开始在密西西比大学读大一了。两位年轻女性都表示,进入大学生活的过渡很艰难,有时还很孤独。

Continue readingWelcome to Campus: A New Community for Students with Arthritis

acr 2018

ACR 2018 Sessions Include Drug Pricing, OA Treatments, Diet as Therapy

The American College of Rheumatology (ACR) reports there were currently 15,000 attendees representing 106 countries at the 2018 Annual Meeting in Chicago and more than 3,000 abstracts on exhibit. Also on tap: session after session highlighting the newest research and filling in information gaps, and the Arthritis Foundation’s Patient Reps are hard at work going to them and reporting back with their findings and impressions.

唐娜·德尼尔参加了一个名为“药品利益管理机制和患者获取药物的途径”的会议。PBMs, which stands for Pharmacy Benefit Managers, are the groups that work between drug manufacturers andhealth insurance plansthat decide which drugs are in the plans’ formulary, how much they will cost and who will have access. “They are totally opaque, powerful, they use a system of rebates and fees to set the prices. They are largely unregulated,” says Dernier. Thanks to long, complicated forms that medical practices have to fill out, “Lots of practices cannot handle that workload and their patients lose out,” she says.Continue readingACR 2018 Sessions Include Drug Pricing, OA Treatments, Diet as Therapy

acr 2018

Patient Perspectives at the American College of Rheumatology Conference

“Patient perspective,” “patient-reported outcomes” and “shared decision making” are hot topics at theAmerican College of Rheumatology (ACR)2018 Annual Meeting in Chicago. In fact, many patients – including some of the Arthritis Foundation’s patient representatives – are attending the four-day event, which highlights rheumatology developments and draws medical professionals and researchers from around the world.

关节炎基金会的病人代表之一唐娜·德尼尔报告说,她遇到了黑兹尔·布兰德博士,她是风湿病健康专业人员协会(AHRP)即将上任的主席,该协会是ACR的一个部门。德尼尔说:“她注意到我的病人代表贴纸,停下来说她很高兴看到病人参与了这么多方面的医疗保健。”

Besides attending the conference, patients are getting involved in many ways. Four patients affiliated with the Arthritis Foundation exhibited posters during the Patient Perspectives Poster session on Sunday.

Continue readingPatient Perspectives at the American College of Rheumatology Conference

live yes arthritis community forums

Don’t Miss Live Yes! Online Discussion Forums About Arthritis

  • Want to know what other patients have experienced from a specific treatment?
  • Dealing with issues your child with arthritis is having in school?
  • Has someone else faced a certain insurance issue you’re struggling with?
  • 如果你只是想分享一个你认为其他人可能从中受益的技巧呢?

Those are just some examples of the kind ofdiscussion forum topicsyou’ll find through the new生活是的!Arthritis Network. Live Yes! is a hub for the arthritis community. It’s a community where large and small groups gather, to share resources and opportunities that can help everyone live their best life.

作为一个社区,我们一起努力改善身体健康,以及情感和社会健康。我们帮助关节炎患者找到彼此的力量,管理压力,控制他们的健康。

Continue readingDon’t Miss Live Yes! Online Discussion Forums About Arthritis

live yes arthritis network

启动Live Yes!Arthritis Network on World Arthritis Day

World Arthritis Day is Oct. 12. That’s the day when we come together from around the globe to raise awareness about arthritis, the world’s most prevalent disease. It’s the day we tell the world how arthritis ruthlessly robs quality of life, keeping many people from doing simple, everyday tasks, and often from doing the things they love.

World Arthritis Day is extra special this year because the Arthritis Foundation is officially launching our生活是的!Arthritis Network.We’ve been working behind the scenes over the past year to create a vibrant, enriching experience for people with arthritis – to help them live their best lives..

Continue reading启动Live Yes!Arthritis Network on World Arthritis Day

world arthritis day blackout

The Arthritis Foundation Goes Dark for Awareness

This Friday, October 12, is World Arthritis Day!

World Arthritis Day is a special day that unifies people of all ages, races, and genders to raise awareness of rheumatic and musculoskeletal diseases (RMDs). Each year, thousands of people all around the world take to social media using the#WorldArthritisDayhashtag onFacebook,Twitter, and Instagram to celebrate the strength and determination of people with arthritis. This year, we’re going a step further.

Continue readingThe Arthritis Foundation Goes Dark for Awareness

california coast classic fundraising

2018 California Coast Classic Bike Tour Raises Over $1 Million for the Arthritis Foundation

As riders of the 2018California Coast Classic (CCC) Bike Tourmade their way into camp on the sandy beachside grounds of Ventura, they were tired, sweaty yet full of energy and smiles. The sounds of cowbells and applause greeted each rider, and soon enough the announcement would come loud and clear from Shannon Marang Cox, CCC Director, and Erin Matthews, CCC Manager. Earlier that morning, the 2018 tour hit the milestone of all milestones –$1 million dollars raised!

This year,180 participants began their journeyfrom San Francisco’s Pier 39 on Saturday, September 22, along with over 50 volunteers and staff manning tour rest stops along the way. Riders cycled at their own pace and made their way down the coast of California’s famous Highway 1, stopping overnight in Santa Cruz, Monterey, Big Sur, Cambria, Oceano, Buellton, Ventura and eventually crossing the finish line in Los Angeles on Saturday, September 29.

Continue reading2018 California Coast Classic Bike Tour Raises Over $1 Million for the Arthritis Foundation