Enhancing Communication Between Patients and Health Care Teams
Pilot Network to Launch Soon
The Arthritis Foundation is currently supporting the development and rollout offour specific scientific initiatives．这些突破性的举措正在塑造新的关节炎治疗方法的发展，并将加强你和你的医疗保健团队之间的关系。One of these initiatives is dubbed “Collaborating With Patients for Better Health” and the central component to this project is the Rheumatology Learning Health System.
What is theRheumatology Learning Health System(RLHS)?The RLHS is a process that builds better bridges of communication between doctors and their patients to improve health outcomes by providing a wholistic picture of a patient’s condition – from not only clinic visit data, but also data entered by patients in between clinic visits and complemented by available research data. It is the central piece of ourCollaborating with Patients for Better Health science initiative．RLHS将通过一个共享的电子平台实现，该平台将为该患者提供者提供的健康记录提供手段。项目的复杂性要求它在少量的地点进行测试，以确保它按计划工作。在发展RLHS之前，它将允许新的想法和概念被“孵化”和彻底测试。
This proof of concept pilot network project will test the RLHS at six sites – three pediatric and three adult sites. So far, three pediatric sites have been selected for this project: Hackensack Meridian Health in New Jersey, Stanford Health Care in California, and Wake Forest Baptist Health -Brenner Children’s Hospital in North Carolina. The adult patient sites will be selected soon. The pilot project will span two years (from February 2018 to February 2020).
The RLHS will securely house information from 3 different sources that will be available to participants through patient and health care provider coproduced dashboards:
- Electronic patient health records maintained at individual medical practices:This contains information obtained during a medical visit, prescription information, and any patient test results ordered by a doctor
- Information entered by patients themselves between visits with their doctors:These are known as patient reported outcomes, and includes information about general health, how a patient is feeling, how many joints are inflamed or painful, or side effects from medications
- Existing arthritis patient registries:Databases of patient health information typically used for research
RLHS design features will include patient and health care provider decision support and shared decision-making tools, as well as features to support patient self-management.
The RLHS is being created through collaboration between the Arthritis Foundation, theChildhood Arthritis and Rheumatology Research Alliance (CARRA), thePediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN),Understanding Childhood Arthritis Network – Canadian/Dutch Collaboration (UCAN, CAN-DU), and theDartmouth Institute for Health Policy & Clinical Practice．每个参与组织都参与了这个系统的共同设计，并指导其前进的道路。
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