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COVID-19: What Do We Know Now?

By Julie Eller, co-host of the Live Yes!WithArthritis Podcast

In the past three months, people in our country and across the world have experienced so much change. We have worked together by staying isolated at home. We have supported our healthcare workers by forgoing elective medical procedures, sewing protectivemasksand even joining those rounds of applausewehaveheardin the streets. We have come together to stand as a united community,vocally advocating for those at high risk,like the immunocompromised, elderly and people of colorwhoare disproportionately impacted by medical crises like this pandemic.Importantly, we have taken these three months to learn as much as we can about the novel coronavirus.On this week’s episode of the Live Yes!WithArthritis Podcast,co-hostRebeccaGillettand I interview Dr. Kevin Winthrop,and together weget answers tosome of the top questions we know have been on your minds.Listen now.

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Gerica’s Tips for the “New” Normal

到目前为止,由于COVID-19全球大流行,读到这篇文章的人可能正在自己的社区经历就地隔离令、学校取消或其他社交距离情况。在加州,我们的州正在接受全州范围内的就地避难指令,而我的孩子们的学校正在向“远程教育”过渡,这是第4周的第2周。我们地区的一些地区已经宣布,这一政策将延续到本学年的剩余时间。如果你和我一样,这个突然而巨大的变化撼动了你的家庭,你正试图驾驭不熟悉的事物。

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Voices bloggers discuss joy

Voices: How Do You Cultivate Joy?

Gina Mara

Twitter @ginasabres

Gina Mara for VoicesJoy is something that we feel robbed of when dealing with everyday symptoms ofrheumatoid arthritis (RA)和医生预约。当我第一次患上风湿性关节炎时,我感到孤独和孤立。我不能做以前能给我带来快乐的事情,尤其是在假期里,比如参加派对、喝酒甚至长时间站立。在社交媒体上与人交流拓展了我寻找快乐的视野。现在,我发送积极的信息给人们带来快乐,这也让我很开心。我寄了很多这样的信,现在我也收到了,在我最意想不到的时候。我甚至收到了来自全国各地的人们为我唱生日歌的视频。我仍然在参与社会,我只是做的和别人有点不同。我可能不在某个地方,但当我发送一些简单的话语来传播快乐时,人们知道他们在我的心中和脑海中。

Joy Ross

Facebook @Through the Eyes of Joy

YouTube @Joy Ross

Joy Ross for VoicesI have always been a joyful person, but my complete loss of eyesight as a result ofjuvenile arthritis [JA]and my two young daughters’ diagnoses with JA, I have learned that joy is a choice. As a Christian woman of faith, I allowed God to teach me how to truly walk by faith and not by sight or on pure emotions. God began showing me the true meaning of joy even when the circumstances looked hopeless. Every single day I make the choice to begin the day on a joyful note. My story of hope, perseverance and love is changing lives all over the world! If it were not for our challenges and my faith in Jesus, I wouldn’t have this beautiful perspective. I believe when you choose joy, you find strength, hope and purpose.

Lene Andersen

www.theseatedview.com

Lene Anderson for VoicesGratitude is about slowing down enough to really notice joy, beauty, what’s funny and what’s good. It’s about experiences instead of things and remembering that I am a lucky woman. This is easierduring the holidays我们身边到处都是爱的提醒,以及我们应该感恩的一切,但我每天都在努力练习感恩。Taking note of positive things andtalking to positive peoplehelp. Going out with my camera to capture the beauty of the world always makes me feel better, and there’s nothing like sitting quietly with a purring cat on my lap to appreciate the present. Life isn’t about perfection or about stuff, but about love. Finding a way to express that – toward others, toward myself – is at the center of how I cultivate gratitude.

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OA helped Chef Ben Bebenroth find the recipe for a balanced life.

Eight days before he is due for a total knee replacement, Ben Bebenroth is nailing shingles onto a wooden walkway to his barn in the pouring rain. Mid-winter warming has turned the snow into muck, and a bride is on her way to check out the event space at his Spice Acres Farm. The centerpiece of his commitment to locally sourced food, the farm is an outgrowth of his popular Cleveland, Ohio, restaurant, Spice Kitchen & Bar.Continue readingOA helped Chef Ben Bebenroth find the recipe for a balanced life.

maude lewis

“Maudie” Stuns and Inspires Audiences

Juvenile arthritis awarenessis in high gear – with Juvenile Arthritis Awareness month and two JA Conferences being held between July and August, this is the perfect time for director Aisling Walsh’s movie “Maudie” to hit theaters in most major markets.

“Maudie,” based on the true story of Maud Lewis, follows Maudie’s debilitating experience with arthritis throughout her life. Set in 1937, the movie begins with Maudie painting flowers on a wall with great difficulty. Sally Hawkins’s portrayal of Maud Lewis shines, as she next contorts her body to seem very small as Maudie sits smoking on the porch of her shrewd Aunt Ida’s house (Aunt Ida is played by Gabrielle Rose). Upon learning that the house will go under construction, Maudie is quick to find an opportunity as a live-in maid in a tiny shack with a gruff man named Everett (played by Ethan Hawke). And though rocky at first, the optimist and the pessimist, both social outcasts in their respective ways, begin a relationship.

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