When you meet Amy McCormick and her daughter, Kylie, of Hauppauge, New York, you instantly feel as though you’ve known them for years. They both consistently greet you with warm smiles and joyful hellos, chatting about their love ofHamilton, the arts and their newly adopted rescue puppy named Autumn.
Continue readingChampions of Yes: Amy and Kylie McCormick Form a Dynamic Duo to Tackle Juvenile Arthritis
Born on July 4, Geoff and Sara Morthland called red-haired Ellery their “firecracker,” but at 19 months old, only Ellery’s knees were inflamed. They soon discovered the reason:juvenile arthritis(JA).
“I felt so powerless, Sara Morthland, Ellery’s mother, said. “I couldn’t make it go away.”
The Baton Rouge, Louisiana resident turned emotion into action and searched for a fundraiser supporting an arthritis cure. When she discoveredWalk to Cure Arthritis, Sara was elated—only to learn Louisiana did not have a Walk.
Continue readingVolunteer Kick-Starts Successful Louisiana Walk To Cure Arthritis Event
This summer at the 2016 NationalJuvenile Arthritis Conferences, a charismatic young man proudly wearing a bright orange University of Florida Gators shirt walks briskly and with purpose throughout the conference areas. As he turns the corner, you can see the back of his shirt reads something unexpected. It’s not a last name like you might normally see on a Gators shirt – but the words “Parker’s Brother”, clear as day.
Continue readingSuper Siblings Play An Important Role for Their Families
Tom Neville will be running his second TCS New York City marathon this fall. He describes his first marathon in 2015 as exhilarating and beautiful but painful. So why will Tom be running a second marathon? He is running in honor of his niece Brielle, only 5 years-old, who hasjuvenile arthritis.
Continue readingNYC Marathon Runner Helps Fight Juvenile Arthritis One Step at a Time
Until last summer, Ellie Pruitt was your typical little girl who loved to swing, draw with chalk on the driveway and feed the fish and turtles in the pond at the back of her house in Canton, Georgia, a suburb north of Atlanta. She was funny, smart and especially witty for a soon-to-be 4-year-old (and soon-to-be big sister).
But almost a year ago, Ellie started complaining about her legs hurting all the time and feeling tired. She started playing with her toys at the kitchen table because it was too painful to play on the floor. She couldn’t sit with her legs and feet crossed, unable to bend her knees 90 degrees. Her parents thought it might just be growing pains.
Continue readingMeet the Pruitts, Warriors Against Juvenile Arthritis: “We’ve got to be upbeat and positive”
说帕克·伦蒂尼在过去几年的生活就像坐过山车可能是轻描淡写的。他和他的家人所经历的令人伤脑筋的起起伏伏比大多数人一生中经历的还要多。然而，正是他们的希望和信念，以及努力抓住一路上遇到的高潮，帮助他们度过人生的低谷，当他们感觉生活被彻底颠覆的时候。一次。
帕克今年16岁，和家人住在坦帕市。自从6年前被诊断出患有全身性少年关节炎(sJA)以来，他已经住院20多次了——伴有“交叉症状”，以及低γ球蛋白血症、严重过敏和哮喘。
Continue readingTheir Unshakable Spirit: Why Parker and His Family Walk to Cure Arthritis
When you’re feeling down, almost nothing feels better than a snuggle with your favorite friend. Nobody knows that better than Juliette Harrison.
年仅11岁的朱丽叶被诊断患有少年关节炎(JA)，这是一种影响美国近30万儿童的炎症性疾病。由于关节发红和持续疼痛，她被迫减少了许多她喜欢的活动，比如骑马和跑步。可以理解，茱莉亚很伤心，她需要一个特别的朋友陪她去看医生。但不能只是普通的朋友。这个朋友需要像朱丽叶一样。她也得有关节炎。
Juliette’s mom went on a search to find a doll or stuffed animal that Juliette wanted. There were animals with glasses or braces. There were even dolls with casts or in wheelchairs. But there wasn’t the one doll Juliette needed. Fortunately, Calesta, Juliette’s mom, found a vendor on Etsy who was willing to custom make a doll for Juliette. The doll, named Love, began accompanying Juliette to every appointment with her pediatric rheumatologist.
Continue readingCrocheting for a Cause: Juliette Harrison Handcrafts Animals for Children with Arthritis
The saying goes that it takes a village to raise a child. Chrissy Rose had always known that statement was true, but when her toddler son, Carson, was diagnosed with juvenile arthritis (JA) at 15 months, she felt it even more acutely.
“We hardly understood that our child could have arthritis, let alone knew anyone else who was dealing with it,” recalls Chrissy. “We were a little lost.”
After moving from Ohio to Indiana far away from most of their family and friends, the Roses connected with their local Arthritis Foundation in Indianapolis. While they formed a small team for their first event– the Indy Walk to Cure Arthritis — they found inspiration to expand their team and fundraising efforts for the next year’s walk.
Continue readingExpanding their Village: Carson and the Arthritis Foundation
Like a lot of three year olds, Carson is still working on his “th” sound,” so it should come as no surprise that when he talks about arthritis, it sounds more like “arfritis.” What is surprising is that he has to talk about arthritis at all.
Diagnosed withjuvenile arthritis (JA)when he was just 15 months old, Carson is just one of nearly 300,000 children who have JA. Carson’s arthritis is polyarticular, which means it affects five or more joints. While Carson initially struggled mostly in his knees, he also has limited mobility and increased pain in his wrists. While you’d think that pain would be a clear indicator of arthritis, for Carson and thousands of other children, getting a diagnosis was not that simple. The myth that arthritis is only for older people persists.
Continue readingWhen Being a Child Hurts: Even Medicine Can’t Make it All Better
大多数人说，卡森是一个典型的三岁男孩。他的房间装饰着超级英雄。《忍者神龟》他看不够。他在倒数他的四岁生日。他喜欢涂色。卡车和恐龙是经常玩的伙伴。但有一点——而且是很重要的一点——卡森根本就不是典型的。He hasjuvenile arthritis (JA).
Though it took several months, Carson received his official diagnosis of polyarticular juvenile arthritis, meaning it affects five or more joints, when he was just 15 months old. His mother, Chrissy, suspects he had been in pain for much longer.
Continue readingMeet Carson Rose: Redefining Normal & Turning a New Reality Into Yes