Tag Archives: rheumatoid arthritis

Chef Michael Symon’s Recipe for Easing Arthritis Pain

On cooking shows likeThe ChewandBurgers, Brew and Que, the charismatic Chef Michael Symon, with his signature bald head and contagious smile, whips up mouth-watering dishes with what seems like boundless energy and enthusiasm. What’s not so apparent are his painful hands, aching knees and ankles, and lurking fatigue.

Symon, 51, was diagnosed in his 20s withrheumatoid arthritis(RA) and discoid lupus, a form of lupus that primarily affects the skin, but also the joints.

西蒙回忆说:“一天早上,我醒来的时候,眼前出现了两个巨大的蝴蝶斑点。”起初,他和他的皮肤科医生专注于通过远离阳光来控制红斑狼疮。但当他的关节症状持续存在时,他的皮肤科医生把他送到了风湿病专家那里,后者诊断为风湿性关节炎。

Growing (Older) Pains

Reprinted from Fix it With Food. Copyright © 2019 by Michael Symon Photographs copyright © 2019 by Ed Anderson. Published by Clarkson Potter, an imprint of Penguin Random House, LLC

Symon’s arthritis pain and stiffness affects his ankles, knees, elbows, wrists, and hands. Some of his joint issues stem from broken ankles and reconstructive elbow surgery from wrestling in high school and college – the reason he insisted his own son choose a different sport, he says with a laugh. The pain in his hands is worsened by “30-plus years of cooking, holding a knife butchering – doing a lot of that in coolers, 35-degree temperatures,” he says. Now that he has others do the precise cutting needed in the restaurants, he’s more than happy to give his hands a break at home by buying precut produce and using a food processor.

His primary care doctor suspects he also hasosteoarthritis. “’There’ll be a point where you’ll have to get both knees [replaced], and your hips aren’t great either,’” he told Symon.

As Symon got older, he found himself taking increasing amounts of over-the-counternonsteroidal anti-inflammatory drugs(NSAIDs). “When you’re younger, you tend to grunt through some pains more. As I got older, I don’t know if the aches and pains increased or my pain tolerance decreased – one of the two [happened],” he says.

His Personalized Pain Therapy

Symon, whose grandmother had RA, knows the disease will continue to cause damage if he doesn’t take adisease-modifying medicationto address it. “My grandmother, by the time she passed, it was crippling. I understand that certainly is something the future may have for me, but at [my age], I’m going to continue to do things as best as I can and still continue to enjoy it,” he says.

Instead — and counter to most medical professionals’ advice — he has leveraged his own professional knowledge to try to manage his overall health and arthritis through diet – with mixed results. He tried a vegan diet (he wasn’t a fan, although his wife is vegetarian) to try to lower the tendency to high cholesterol he inherited, but it didn’t budge his numbers. He ended up taking a cholesterol-lowering medication.

But for his RA, he focused on reducing the foods that cause his joint pain to escalate. His hands are a little “crooked,” he says, but he can generally manage the pain.

Reprinted from Fix it With Food. Copyright © 2019 by Michael Symon Photographs copyright © 2019 by Ed Anderson. Published by Clarkson Potter, an imprint of Penguin Random House, LLC

“I’ve thought about taking something for the RA, but there’s a point [where] I’ve been able to control the pain, I’ve found, with diet. So – right, wrong or indifferent – my choice would always be to take less medication,” he says. “I started playing around with my diet to see if Icould reduce the aches and inflammation through diet. That’s what led to me trying to figure out what my own personal triggers were that affect how I feel.”

It also led to a new cookbook he co-authored,Fix It With Food: More Than 123 Recipes to Address Autoimmune Issues and Inflammation, released in late 2019. He is currently working on another volume ofFix It With Food, which will be released in November 2021.

食谱很简单,即使对我们这些不懂厨房的人来说也是如此。“里面有红薯和椰子炖菜,做起来真的很容易。在商店里很容易找到切成丁的红薯,其他食材也是如此。”“你把所有的东西都放进锅里,慢慢炖,味道会很好。It’s probably my favorite recipe in the book from a flavor standpoint, and it’s not a lot of work to get a meal that feels special.”

Modifying his diet has eliminated about 80% of his joint pain, but “it’s not a cure, it’s maintenance.” And it only helps if he sticks with it.

Unfortunately for Symon, who has a particular love for cheeses and other dairy products, he discovered that what triggers his arthritis symptoms most are sugar and dairy. So now, instead of eating ice cream three times a week, he’ll indulge in ice cream (“a double whammy because it’s sugaranddairy,” he says) or cheese every couple of weeks.

“I’ve learned that dairy makes me feel pretty [bad]. That being said, ice cream makes me feel pretty happy, so there are times where I make a decision [that] I’m going to have the ice cream, and tomorrow I’m just not going to feel great,” he says.

“If I do the right things, I feel great on a daily basis. In the early years of me having [arthritis pain], I’d get aggravated by it and try to push through,” he says. “Now I understand I have to live a certain way to feel better. Instead of getting frustrated, I just get back on track now.”

Adjusting to the Pandemic

在疫情期间,他的饮食不像往常那样健康——“比正常情况下吃得更多,”他说。他拥有和/或管理着15家餐馆,这些餐馆不得不适应大流行病的限制和经济后果。大多数城市已经重新开放,但现在面临着防护装备短缺和冬季天气的挑战。

《美食频道》的拍摄对他来说也发生了巨大的变化。He already had given up intense competitions likeIron Chef, but he’s a regular on other shows and has his own string of productions as well. He shot the latest,Symon’s Dinners他的烹饪总监和社交媒体经理在家里通过手机给他提供了帮助。他笑着说:“做了25年的电视节目,这还是第一次。”“这些节目真的很好。”

作为一名厨师和餐厅老板,他通常会不停地走动。他说:“我很少有一天走不到2万步的。”随着疫情的爆发,他不再经常出现在餐馆里,但他和妻子今年早些时候收养的一只小狗正在帮助他弥补活动的不足。

“We’ve always had mastiffs and those kinds of dogs that you walk them to the end of the driveway and they’re exhausted. This is our first terrier. I walk him two or three times a day and he’s never tired,” Symon says, so he still clocks more than 20,000 steps a day. “I try to play golf twice a week just to keep my mind straight,” he adds, and “I do a lot of stretching and a lot of meditation and breathing. Once you realize it makes you feel better, you just get in the routine.”

A benefit of the pandemic is the extra time with his wife and his son and daughter-in-law, whose baby is nearly 2 now. “I’m not a huge fan of all the travel that sometimes work brings,” he says. “Our granddaughter only lives about five minutes away, so I get to see her several times a week and spend time with her, which is great.”—JILL TYRER

Chef Symon’s Holiday Cooking Advice

Reprinted from Fix it With Food. Copyright © 2019 by Michael Symon Photographs copyright © 2019 by Ed Anderson. Published by Clarkson Potter, an imprint of Penguin Random House, LLC

Plan ahead and start preparing your holiday meal a week in advance. “There are a lot of things you can do five days in advance so you’re not on your feet 10, 12 straight hours or whatever trying to get it all done the day before and the day of,” he says.

Consider what you can make ahead and freeze, like casseroles, he suggests, so you’ll just have to warm them up before serving. “Get vegetables cut, make your stock, do the kinds of things you can do in advance,” he says.

If you’re super stressed, that doesn’t help的事情,”他说。“真的,在一天结束的时候,COVID教会我的一件事是享受你的家人,所以你最不希望在假期里感到压力大、疼痛和痛苦,而不是享受你周围的人。”

Check out these holiday-appropriate dishes Symon and his culinary director recommend fromFix It With FoodSlow-Roasted Salmon,Loaded Greens With Walnuts and Mushrooms, andPumpkin Pie.

Defying Gravity: Athlete and Dancer Reesa Partida Takes RA in Stride

Reesa Partida grasps and loops a dangling swath of fabric, places her foot against it and lithely climbs up before swooping into an aerobatic dance of twists, splits and perfectly pointed toes – a demonstration of grace and strength. “I think I was inspired by Cirque du Soleil,” Reesa says with a laugh. “I thought it looked like a lot of fun, so I started by taking a class three and a half years ago.”Continue readingDefying Gravity: Athlete and Dancer Reesa Partida Takes RA in Stride

Alayna Travaglione header

Alayna Travaglione: Her Dreams of Studying Abroad Came True

Studying abroad can be an exciting but nerve-wracking experience. The comfort zones you are so used to back home become non-existent as you make your way through an unknown country meeting new people and immersing yourself into different cultures. For a college student withRheumatoid Arthritis, there are a few extra challenges I have to face and while doing so, I often question if choosing to travel for a semester was the best option for me. As someone who has Arthritis in all of their joints and still undergoing surgical procedures, the idea of being in an unfamiliar place away from my family and doctors was downright scary. What if my joints got worse or something happened with mymedications? What if I decide midway I can’t put my body through this anymore? These questions often swirl around in my head as the activities become difficult or the field trips become too strenuous that I am left lying in bed the next day. When I do ask myself these questions though, I reflect on why I chose to study abroad in the first place.Continue readingAlayna Travaglione: Her Dreams of Studying Abroad Came True

Voices bloggers discuss joy

Voices: How Do You Cultivate Joy?

Gina Mara

Twitter @ginasabres

Gina Mara for VoicesJoy is something that we feel robbed of when dealing with everyday symptoms ofrheumatoid arthritis (RA)and doctor appointments. When I first developed RA, I felt lonely and isolated. I couldn’t do things I used to do that brought me joy, especially during the holidays, like attend parties, drink or even be on my feet for long. Connecting with people on social media expanded my horizons about ways to find joy. Now, I send people positive messages to bring them joy, which also makes me happy. I’ve sent so many of these that now I receive them, too, when I least expect it. I’ve even gotten videos of people from across the country singing happy birthday to me. I am still participating in society, I just do it a little differently than others. I might not be somewhere in person, but when I send some simple words spreading joy, people know they are in my heart and mind.

Joy Ross

Facebook @Through the Eyes of Joy

YouTube @Joy Ross

Joy Ross for VoicesI have always been a joyful person, but my complete loss of eyesight as a result ofjuvenile arthritis [JA]and my two young daughters’ diagnoses with JA, I have learned that joy is a choice. As a Christian woman of faith, I allowed God to teach me how to truly walk by faith and not by sight or on pure emotions. God began showing me the true meaning of joy even when the circumstances looked hopeless. Every single day I make the choice to begin the day on a joyful note. My story of hope, perseverance and love is changing lives all over the world! If it were not for our challenges and my faith in Jesus, I wouldn’t have this beautiful perspective. I believe when you choose joy, you find strength, hope and purpose.

Lene Andersen

www.theseatedview.com

Lene Anderson for Voices感恩是放慢脚步,去真正注意到快乐、美丽、有趣和美好的事情。它是关于经历而不是事物, 记住我是一个幸运的女人。This is easierduring the holidays, when reminders of love and all we have to be thankful for are all around, but I try to practice gratitude every day. Taking note of positive things andtalking to positive peoplehelp. Going out with my camera to capture the beauty of the world always makes me feel better, and there’s nothing like sitting quietly with a purring cat on my lap to appreciate the present. Life isn’t about perfection or about stuff, but about love. Finding a way to express that – toward others, toward myself – is at the center of how I cultivate gratitude.

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liz morasso patient story

Liz Morasso: Support Networks Helped Her Adjust to a New Life

As part of our vetting process forArthritis by the Numbers– a collection of verified arthritis facts and figures – we invited patients to comment on the disease section that most affected their lives. After all, they are the experts on how the disease changes and challenges everyday living.

Meet Liz Morasso, a licensed clinical social worker at UCLA’s department of radiation oncology who hasvolunteered for the Arthritis Foundationsince 2002. That’s when, at age 16, she was diagnosed withsystemic lupus erythematosus (SLE)andrheumatoid arthritis (RA). Over the years, she has immersed herself in leadership roles with the Foundation and speaks nationwide to inspire patients living with chronic illness.

Following, in her own words, is Liz’s story about living with these conditions and how the statistics she reviewed in Arthritis by the Numbers relate to her personally.Continue readingLiz Morasso: Support Networks Helped Her Adjust to a New Life

eileen schneider patient story

Patient Partner’s Words of Wisdom About Living With RA

As part of our vetting process forArthritis by the Numbers– a collection of verified arthritis facts and figures – we invited patients to comment on the disease section that most affected their lives. After all, they are the experts on how the disease changes and challenges everyday living.

Meet Eileen Schneider, who is a registered nurse and has a passion for patient advocacy. Following, in her own words, is her story about living withrheumatoid arthritis (RA)and how the statistics she reviewed in Arthritis by the Numbers relate to her personally.

Continue readingPatient Partner’s Words of Wisdom About Living With RA

sharae mansfield

Benched by RA, Pro Hoops Player ShaRae Mansfield Still Shoots to Win

ShaRae Mansfield清楚地记得17年前接到的电话,说休斯顿彗星队(Houston comet)选中了她,让她在美国国家女子篮球协会(WNBA)打球。对于这位西肯塔基大学(WKU)的学生来说,有机会打职业篮球是梦想成真。

But her WNBA career was short-lived. While she had mad skills on the court, excelling at both points and rebounds, she also had frequent pain in her shoulders, hips and especially her left knee, made worse by a torn anterior cruciate ligament (ACL). ShaRae had undergone six surgeries on it, but her continued knee problems led the Comets to release her before she completed even her first season.

Continue readingBenched by RA, Pro Hoops Player ShaRae Mansfield Still Shoots to Win

rheumatoid arthritis patient stories

Life Doesn’t Stop with RA: How Three People Keep Doing What They Love

Mark Rucker: “Adopt a healthier lifestyle”

mark ruckerWhen Mark Rucker was diagnosed in 2015 withrheumatoid arthritis (RA)at 44, he had mixed emotions. He was glad to know what had been causing the often unbearable pain in his hands, feet, jaw and toes for the past year. But, he recalls, “I always thought RA was a disease that only affected elderly women, not someone who was in the midst of training for their second Ironman competition.”

A real estate attorney in Lexington, Kentucky, Mark in the past had been a self-described “385-pound couch potato.” Being told in 2011 that he was too big to ride on the rollercoaster with his kids spurred him to change his lifestyle. He traded in sugary sodas for water, cut processed sugar and addedfruitsandvegetables他开始在每天午餐时间步行一英里。他减掉了135磅,这些生活方式的改变让他在2013年完成了他的第一次铁人赛——2.4英里的游泳、112英里的自行车骑行和26.2英里的马拉松。

Continue readingLife Doesn’t Stop with RA: How Three People Keep Doing What They Love