A big part of ourCollaborating With Patients for Better Health科学倡议已经与主要伙伴合作建立了风湿病学习卫生系统(RLHS)。RLHS的目标是通过电子仪表盘加强患者和医生之间的交流来提高护理质量。
这些仪表板支持关于护理和治疗计划的有意义的对话和共享决策。它们包括患者报告的结果(PROs)，使患者能够在临床访问之前列出问题和担忧。患者和医生可以打开/关闭不同的数据元素，以专注于最有意义的数据。
在这个项目的试点阶段，该小组在三个儿科网站创建并测试了基于纸张的仪表板版本。在下一阶段，将创建电子版本的仪表板，并添加成人网站。詹妮弗正在帮助我们使这个项目成功。
Jennifer is a member of the Dartmouth-Hitchcock Adult Pilot Site Team. She was diagnosed withrheumatoid arthritis (RA)10 years ago. While being treated with methotrexate, she started experiencing flares. Her doctor prescribed a short course of prednisone.
Reviewing the RLHS dashboard (like the one below) with her doctor helped them both see the visual of her joint count increasing in her RAPID3 scores. This led to her trying a new medication. Seeing Jennifer’s data at a point-in-time, and then over time, helped her and her doctor see how her RA disease activity needed a different treatment approach.
Jennifer says, “In the past, when thinking about a change in therapy, I’ve had some hesitation. It involves weighing how well I’m currently doing against things like possible side effects. What impact will the new medication have? Will I feel better? And equally important, what’s the added cost of a new medication?”
The dashboard helps focus conversations between patients and doctors. Asking patients like Jennifer the “Why” behind the reluctance or hesitation about changing medications invites a conversation about patient preferences and whatever extra help they may need.
“We’re trying to improve patient care by helping patients and doctors prepare for office visits, working together as a team, and improving communication between visits,” explains Arthritis
基金会高级副总裁盖伊·埃金博士。“这是一项困难的实验，也是我们为能与患者和专业人士合作来完成的挑战而感到自豪的类型。我们感谢捐助方的慷慨解囊，使这个项目成为可能。”
The Arthritis Foundation is working with the following partner organizations: Childhood Arthritis and Rheumatology Research Alliance (CARRA); the Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN); Understanding Childhood Arthritis Network – Canadian/Dutch Collaboration (UCAN, CAN-DU); and the American College of Rheumatology (ACR). The Dartmouth Institute for Health Policy & Clinical Practice facilitates the group by providing strategic oversight and support for the RLHS.